My First Child (Who did not result in miscarriage or stillbirth) She has 22Q Deletion Syndrome (DiGeorges) She was born with an underdeveloped left ventricle that was fixed in utero. She also has a Heart murmur, Atrial Septal Defect and PFO (which resolved in 12/5/2018). She also has Aspergers Syndrome (High Functioning Autism, Level 1 Autism ect.), Sensory Processing Disorder, DMDD, ODD, ADHD-Combined and several other behavioral and physical health issues. She is my CHD and 22Q Warrior. She is my world, my life, my meaning for existence. She has my attitude, combined with her fathers stubbornness. She certainly shows us that she will accomplish anything and everything.
Lucius-John
Lucius-John is Matt and I's son. He is my second earthside miracle baby. Born June 8th 2017 at 38 weeks. He Has Hemophilia B and Hypogammaglobulinemia (A Type of Rare Severe Immune Deficiency)
Kayleigh-Marie Faith
My Sweet Kayleigh was taken from us at 20 weeks on May 2ed 2008. She had HLHS and passed as a result of a partial placental abruption and several clots in her cord. (Yes, I have watermarked this. Unfortunately there are sickos in todays world who steal photos like this)
Andrew
Andrew is my amazing fiancee, and the love of my life. He brought light back into my life, and he grounds me when I need grounding. He is amazing with both my children and loves them like his own. This man never ceases to amaze me. We're getting married July 10th, 2021
Matthew
Matthew is Lucius's father. Sometimes in this blog, I may mention from time to time, ramblings about his life, or stuff that involves him, or whatnot, so figured I'd include a picture to lessen confusion.
Jason
Jason is Gabriella's father. Sometimes in this blog, I may mention from time to time, ramblings about his life, or stuff that involves him, or whatnot, so figured I'd include a picture to lessen confusion.
0 comments:
Post a Comment