SOLE Custody and a bit of an Update

<3 Little Man
Me and My Sissy!
I got awarded SOLE custody of my son today! This makes me super duper happy! I knew that if I kept strong, and kept fighting and advocating for him, AND I got a PAID attorney, that I would get what I wanted.









I am happy, I just hope that Matthew abides by his visitation schedules, and does what is best for little man, and we can continue to both heal and move toward a healthy coparenting relationship, for our son. (Right now its far from that point)




Me and Holden! Besties!
My friend Chase!
Also, this month, we went to Chase's first birthday! My friend DJ's sister Rachel. Chase is such a ham, and he is only a few months behind Lucius!  Lucius also got to meet Holden, which is DJ and his girlfriend Natasha's kid.

AND we moved into a big boy carseat! Don't worry, we're still rear facing! I am actually one of those moms who believe in extended rear facing for as long as I possibly can, because research shows that their little necks cant support their head yet and is still developing.











I love my sissy!
Mommy, Sissy and I!
We also enjoyed the last relatively warm summer day by backpacking on mommy's back!

I am thinking about getting Lucius his first haircut, because he really needs one, but I am not quite ready to do it yet. I love his little curls on the back of his hair, and his "helmet" hair that he gets.






Exploring!
He loves the park!


Anyway, here are

some photos.


























He will ALWAYS be mommy's baby boy! Look at that hair haha!



























HypoGamma and Hemo what?
















 August was a rough month for me…. Well, really, for both Matt and I. We’re trying to find our “new normal” but really, what is normal?

Matthew is now engaged to his fiancée, Isabella, and they are living together. I am still single, and I am working on myself.

Lucius started his infusions. I know some of you are probably like wait, what? Infusions for what. Let me catch you up to speed on some things.

In March 2018, Lucius saw Hematology for the first time, for a work-up of Hemophilia and Factor V Leiden, since there is a family history. When I was pregnant, I saw Genetics at Cleveland Clinic, who told me very clearly that I didn’t have Hemophilia, because woman don’t bleed. I have results that say otherwise now, that I am a carrier of Hemophilia.

Dr. Ahuja decided at that time, in March, to run some tests on Lucius to see where he was at. I knew he was going to have both. Call it mom instinct or whatever, but I had hope that he didn’t, based on what the geneticist had told me. 

His factor level was tested, and he came back low, at 45%. He also came back having Factor V Leiden. We knew he likely would, just based on my family history on my moms’ side alone. We know my mom also has Factor V, and my nana does not, so it came down from my Grandfathers side.

As for the Hemophilia, this came from my dads’ side, and came down from my dad. Lucius was diagnosed with Mild Hemophilia B, officially, in March 2018. I cried when he was officially diagnosed, because I was hoping that he didn’t have it, based on the genetic testing that was done on me.

Mild hemophilia B is a form of hemophilia B characterized by a small deficiency of factor IX leading to abnormal bleeding because of minor injuries or following surgery or tooth extraction. With Mild, you only must worry about head injuries, surgery, dental work, or major traumas like being hit hard in the gut. You also must worry about joint bleeds long term.

The doctor said that the plan was simply to re-test his factor level in a year. So we have a year follow up for March of 2019, and in the meantime, hope that Lucius doesn’t get any bleeds.
Well, fast forward to the end of 2018. Lucius had three bleeds. One in August, which was the result of him walking backwards, slipping and falling into the entertainment center. The other was the result of his sister playing with him, and knocking him off the bed, and then there was the fall to the cement stairs outside which cut his frenulum. I think that one was the bloodiest. All of these were head injuries. 

The ER administered Amicar for the mouth bleed, and Benefix (factor) for the others, for on-demand, and basically told us to follow up with the doctor.



Speaking of August…. This was also when Lucius was diagnosed with Hypogammaglobulinemia, a rare form of immune deficiency.

Such a big word for a little guy… 

Matt and I knew there were a chance that Lucius would/could have an immune deficiency because he and his mother also have forms of immune deficiencies.

Looking back, Lucius had a rough first year of his life, I won’t lie. Between his Milk Protein Soy Allergies, and being sick with chronic ear infections, a bout of RSV twice, pneumonia once, and always being sick with upper respiratory infections, I thought this was normal for him.

Here is Me Prepping Lucius Infusion
We went to see an immunologist in May of 2018 to find out why. It was just before his first birthday. Lucius had some testing done based on Matthew having a family history of immune deficiency, and the fact that he was always sick with these infections. Than the doctor ran vaccine challenges, and then the doctor told us that he would need infusions of a medicine called Hizentra. This drug was meant to replace his immunoglobulin that he did not produce, and it was meant to attempt to keep him out of the hospital.

Here is Lucius with his wonderful nurse, Leslie. We love her dearly.
So, little man has weekly infusions of this medicine, with our wonderful nurse Leslie (and Patti and Sue) and it stinks. It stinks because I want the world for this little guy, and don’t want anything to be wrong with him.





Here is a photo of Lucius Infusion Supplies



When I was pregnant with Lucius, I was very fortunate to have found out as early on as I did, otherwise, I cannot say for certain that my son would still be here today. As parents, we tend to not want anything to be wrong with our children. 

It breaks my heart that he has to go through so much at such a young age. But he is a warrior.



Also, random, but I cannot believe I am going to be 29 soon. I feel olddddd


White Picket Fence Syndrome: Finding Myself Again



White Picket Fence Syndrome
Finding Myself Again After Heartbreak

TRIGGER WARNING: This blog post will share some very personally intimate accounts of my life, and also could potentially trigger someone who is struggling with addiction, mental health or has a past of rape and sexual assault. Please proceed with caution.




I never thought I’d find myself in a position again, where I was forced to be a single parent, AND attempt to let go of that dream, while letting go of the person you once loved and gave your everything and all to.

You know, that dream where you are married, have a house, settle down, have a big family. That dream didn’t include infertility battles, raising kids as a single mom, let alone kids with special needs.
I think everyone has a perfect picture of what they want in life, when they think about it growing up. 

You know… white picket fence syndrome. I wanted it all. I wanted to have the perfect life, the one that I dreamed of having growing up. 

I never thought I’d be able to have to let go of all my hopes and dreams and must try to find myself and do it alone, without my partner and best friend by my side.


My life growing up was anything but great. My mother and father had split up when I was just a baby. My mother struggled with her mental illness and drug addiction throughout most of my childhood. I remember very small images of going to New York to see my father while he was incarcerated. I remember visiting with him on the weekends, when I’d stay with my Aunty Tasha and Uncle Scott. I remember that I was very young when my father stopped coming around, and I remember being told that my father didn’t care about me. 

My mom was in and out of jails until she would finally hit her rock bottom with her addiction. Of course, this meant I was also in and out of foster homes. I lived in the foster care system from age 7 until 17. On and off, never having that stability I wanted. At one point, I even lived in a group home.

The group home was nice, and at least it was a roof over my head, but I never truly felt like I was loved and cared about. All of this is probably why I have unstable relationships.  Honestly, I tried to block away most of my childhood, though the thing I probably remember most was that I was a sick child (I had acute promyelocytic leukemia and went through chemo, radiation, and ultimately an anonymous bone marrow transplant) and that I felt alone and just wanted to be loved.

While my mother had her struggles with addiction, I had struggles with just trying to feel loved, which meant I trusted way too easily. I was raped and sexually assaulted by one of my mother’s boyfriends whose literal job was to protect us. This went on for years, and me and my sister didn’t talk about it. Not until years later when we ended up in a foster home.








They call it “white picket fence syndrome” for a reason. My reason was simply wanting to be loved and wanting to have that “perfect” lifestyle so badly, because of everything I experienced at such a young age.
WHITE-PICKET-FENCE-SYNDROME: A state of mind where a person blindly holds on to the idea of their perfect lifestyle, regardless of the inevitable life factors that make it impossible for it to be true.

This is still a struggle that I struggle with today, and after Matthew and I officially went our own ways because “he had moved on” I can still hear that pain in my mind. Moved onto what? Another woman? I was so easily given up on and discarded. WHY. Why would someone be with me for three years just to easily discard me, especially when we had a son together.

I struggled with those harsh emotions again. I was angry. Angry with God. Angry with the world. How dare I be blessed with a baby after five years of infertility battles, just for that man to decide he didn’t want me or a family anymore. I felt lost. So very lost. BUT, I knew that after the years of emotional and sometimes physical abuse, that I was not ready to date again for a while. I knew that I needed to heal and needed to find myself.

The journey to finding myself was tough. I won’t lie. I had to learn to let go of a lot of things. I didn’t get answers to many things. I had to learn that feeling angry was an okay feeling to be. I think that the best thing was that I had already established counseling, so I was able to work with my therapist on EMDR or trauma therapy, and it was a good time, because like with death, when you end a relationship unexpectedly, it can be triggering to past trauma, because there is a grief cycle to this too. I had to learn it was okay to be selfish. I had to learn that it was okay to do things for myself that made me feel happy. I had to learn that some things I cannot control. 
I think that the most confusing part to all of this was the court battles, but fortunately, our son was young enough to not remember. 

Matthew and I broke up in August 2017, but we were still ‘seeing’ each other about once a month until May 2018 (and by seeing, I mean occasionally having sex) which was when he met his now fiancée. 

Apart of the healing process (which I am still on because its only been about a month) was accepting that my son would be raised by another woman too. I think that is something that bothered me the most, because I was my sons’ mother, and I can never be replaced. I guess I just feel bitter because I was the one who fought for him to be here healthy and safe after everything I had gone through. I was the one who took SIX shots a day during nine months of pregnancy. I was the one who had paid upwards of 25K in treatments for infertility, recurrent pregnancy loss, genetic testing, and immunology. I was the one who did it all because I wanted my son, so so badly. So, I felt a bit bitter and so I had to accept that there would be another woman in my son’s life, and that was a hard thing to cope with.

I think a month after this has all finally hit me, and I can look at it from a different view point. The best thing that Matthew did for me, was deciding to move on. Mostly, because I was the type of girl (and still am) who holds on for dear life, refusing to give up on someone she loves, because she knows how that feels. I guess that goes right back to the whole white picket fence syndrome thing, because I know how bad it feels to be given up on.

I love my son so very much. I adore him. And trying to co-parent and ultimately do what is best for him, is very hard. Its super hard because I am also trying to find myself in this whole thing and am trying to see the light at the end of the tunnel. But, I don’t see it yet. And, I have to wonder what God is truly doing here, because I am unsure if and when I’ll understand his lessons.
I think I will close todays blog with this.

Don’t be like me. Don’t believe that there is this “white picket fence” out there, where life is perfect. Everyone has their own perfect life story, and each is individual, and I am learning that each is without fights, disagreements and that sort of thing. I am learning through all of this to be selfish, and to be who I am, and to find myself again. I am learning to love myself. So, my advice to my readers is to love yourself. Because you will need to know you are worth so much more than you think, especially on days like today, where it is dreary outside, and I feel sad, lonely, and alone. Make your life what you want it to be. 

I hope this time next year; my life is in a much better place.